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The Ryan White Story

Ryan Wayne White  was an American teenager from  Kokomo, Indiana . Ryan was born with hemophilia A, a rare, inherited disorder in which the blood system does not clot normally because of an inability to produce "factor VIII," a prosaically named protein related to this critical process. When a hemophiliac suffers a blunt or bruising injury to the body, internal bleeding often occurs, which causes damage to one's organs and can be life-threatening. Although there is no cure for hemophilia, doctors treat the bleeding episodes with injections of factor VIII to help the clotting process along. But in the years (say 80's) before the threat of HIV/AIDS became widely understood, this substance was pooled and isolated from thousands of anonymous and untested blood donations. What no one knew back then was that every time a pediatrician administered this seemingly life-saving elixir, there was a real risk of administering an HIV-contaminated dose. This was the way i
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Abul Bajandar the Tree-man

He isn't really turning into tree, but the reality is almost as scary. The official name for this condition is Epidermodysplasia verruciformis, but it is  more commonly known as tree man syndrome due to the bark like appearance of the lesions it causes. For years, 28-year-old Abul Bajandar, from  Bangaldesh , was covered with what looked like bark. His hands and feet grew foot-long, gnarled "roots," skin lesions that left him unable to feed himself, move around, work, or wear standard clothing. A few years ago, surgery finally changed his life. But after  more than 25 invasive surgeries  (since 2016) to remove the bark-like skin growths sprouting from his hands and feet, Bajandar, sometimes referred to as the “tree man,” is back where he started. What is epidermodysplasia verruciformis? Epidermodysplasia verruciformis  ( EV ), also known as  treeman syndrome , is an extremely  rare   autosomal recessive   hereditary skin disorder  associated with a high

Alice in Wonderland ' syndrome

Imagine how it would be like, when you have the feeling that you are trapped inside a room that’s far too small. As if you are a giant. Maybe funny when experimenting with some kind of hallucinating drugs. But pretty scary when it constantly seems like the world is just not big enough for you. The condition in which people perceive objects as much smaller than they actually are is called micropsia, or the ‘Alice in Wonderland Syndrome’ or the 'Lilliput sight'. The syndrome was first described in 1955 by the English psychiatrist John Todd (1914-1987). Todd named it, of course, for Alice's Adventures in Wonderland by  Lewis Carroll . Perhaps not coincidentally, Lewis Carroll suffered from severe migraine. Also known as a Lilliputian hallucination. Alice in Wonderland Syndrome  ( AiWS ), also known as  Todd's syndrome  or  dysmetropsia , is a disorienting neuropsychological condition that affects  perception . People may experience distortions in visual perceptio

Amygdala hijack

The  amygdala   is one of two almond-shaped clusters of  nuclei  located deep and  medially  within the  temporal lobes of the  brain  in complex vertebrates, including humans. Shown in research to perform a primary role in the processing of  memory ,  decision-making and  emotional responses  (including fear, anxiety, and aggression), the amygdalae are considered part of the Limbic system. Now the Hijacking part Amygdala hijack  is a term coined by  Daniel Goleman  in his 1996 book  Emotional Intelligence: Why It Can Matter More Than IQ .  Drawing on the work of  Joseph E. LeDoux , Goleman uses the term to describe emotional responses from people which are immediate and overwhelming, and out of measure with the actual stimulus because it has triggered a much more significant emotional threat. when the amygdala senses danger, it makes a split second decision and begins the fight-or-flight response before the cortex has time to overrule it. This cascade of eve

A Brave Heart: The Lizzie Velasquez Story

Eating whatever you want without gaining weight may sound like a dream, But it’s a daily battle for Lizzie velasquez . Elizabeth Anne Velásquez  ( born March 13, 1989) is an American  motivational speaker , author, and  YouTuber . She was born with an extremely  rare congenital disease  called  Marfanoid–progeroid–lipodystrophy syndrome  that, among other  symptoms , prevents her from accumulating  body fat  and gaining weight. Her conditions resulted in  bullying  during her childhood. During her  teenage  years, she faced cyber bullying, which ultimately inspired her to take up motivational speaking. Velásquez's condition is a very rare, previously undiagnosed and non- terminal  genetic disorder.Her condition bears similarities to many other conditions, especially  progeria . Medical researchers at the  University of Texas Southwestern Medical Center  previously speculated that it may be a form of  neonatal   progeroid syndrome (NPS) ( Wiedemann-Rautenstrauch syndro